Jul 15, 2021
Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.
For more information, please see the article discussed:
Pain
perception in people with Down syndrome: a synthesis of clinical
and...
Jul 1, 2021
Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI).
For parents/caregivers:
Children with Down Syndrome: Health Care...
Jun 17, 2021
Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds. If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.
Jun 3, 2021
Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International. Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.
May 25, 2021
Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy. They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved.